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The Non-Addictive Food Diet

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TalkingRat

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Re: The Non-Addictive Food Diet
« Reply #45 on: September 18, 2010, 07:00:33 PM »

Sorry you're still fighting this.† Negative lab tests?† On the worms?† Or were they looking only for eggs?† Cuz if your early comments that it was roundworms was right, how could they miss something that obvious?† My only experience is with puppy worms, and it was so obvious there was no need for a lab test.†

I hope the second lab finds something and you can put this behind you.

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Sanchiaza

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Re: The Non-Addictive Food Diet
« Reply #46 on: September 18, 2010, 10:44:14 PM »

There's a book called Prescription for Nutritional Healing (the 4th edition) by Phyllis Balch which has an entry on worms and intestinal parasites plus nutritional and supplement advice to help get rid of them - perhaps your local library has a copy? It may be worth looking at. It does mention specific worms (not all of them, though) and possible remedies for them.
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Heidi 555

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Re: The Non-Addictive Food Diet
« Reply #47 on: October 02, 2010, 06:21:21 AM »

Thanks TalkingRat and Sanchiaza.  Iím sorry that itís taken me so long to find the time to respond.  Sanchiaza, I have the book that you mentioned.  TalkingRat, Iíll describe my experiences with the labs below.

This whole experience with the worms is absolutely mind-boggling and crazy.  Iím sure that lots of folks here must think that Iím totally whacked.  I think I dropped over some deep Shangri-la self-experimentation cliff a long time ago.  Now Iím wandering through an unfamiliar bardo.  Many thanks to those of you who continue to witness and support my journey.

First of all I just canít believe how many worms have come out of me and that they keep coming.  Secondly, itís so hard to fathom that these creatures are alive and wiggling around inside of me.  Thirdly, Iíve been dealing with a lab and medical system that operates under an entirely different system of reality.  It seems like it should be simple basic science to examine the specimens and determine what they are.  I have been terrified of passing a live worm.  But if one came out alive, then the labs and I would be on the same page.

I have called up the state department of health lab where my stool samples have been sent, in order to try to get some answers as to why my tests results are coming back negative when I am so obviously passing so many worms.  The woman at the lab is really nice and is really trying to help me, but she seems clueless and thinks inside a very rigid box.  According to her only people in third world countries have heavy worm loads.  In this country we have allergies but not worm problems.  All worms come out whole and intact, they donít come out in pieces.  If Iím seeing pieces then it must not be worms.  Roundworms only grow as long as 12 inches. 

For the lab tests they have you collect a very tiny stool sample and put it in a container that has some fluid in it.  I made sure to include a piece of worm.  But the fluid might destroy the worm samples, instead of preserving them.  The woman at the lab looked at my samples under a microscope and thought that it looked like fiber. But maybe she was looking at a piece of fiber and not the piece of worm?  I also sent them a separate worm specimen but she hasnít seen it and doesnít know what happened to it.  (Previously, a different worm specimen was sent to a completely different lab, but it also came back negative.)

So I decided to try some colon hydrotherapy, which is also called a colonic.  Lots of people pass worms during them.  There is a clear tube that runs through the machine so that you can see what is being flushed out of you.  I thought that perhaps I would be able to see and photograph some live worms.  Or perhaps I would be able to get a worm specimen that was in good condition.

I couldnít get my doctor to prescribe more mebendazole yet because of the negative test results.  So I decided to take some pyrantel pamoate dog dewormer a few days before my colon hydrotherapy to increase my chances of passing worms.  Iíd researched it online and pyrantel pamoate is used for humans.  I took a low dose of it.  However, it was really hard to get it down because it was a disgusting butterscotch flavor.  Then I woke up in the night with ridiculous amounts of gas and a bit of a stomachache.  Iíll be reluctant to take it again.

So two days ago I had my colonic.  The procedure was very uncomfortable for me and we didnít see a single worm.  After the procedure I had bad gas pains and felt very uncomfortable for the rest of the day.  The woman who gave me the colonic said that people who have worms have a lot of gas.  But I wondered if the procedure gave me gas.  I was thinking that the colonic wasnít worth it, and that I wasnít going to do it again.

But then yesterday morning (the day after my colonic) I woke up and passed 2 very long worms.  I measured one of them and it was over 2 feet long!  (The other worm was all stuck together and impossible to spread out.)  Later on I also passed a lot more worm pieces, like Iíd been passing all along.  So it seems as though some of the worms might actually be much longer, than I thought.  The worms are white and quite thin.  I find it really hard to believe that a fiber supplement could form a two-foot long thin strand.  Or that I could be passing super long thin strands of mucus. The lab work does not seem to be based on very good science. 

So I am currently trying to get my doctor to prescribe another round of mebendazole.  I am scratching my head as to where to go next in terms of having my worm specimens examined and diagnosed.  I even tried calling a vet, but that didnít get me anywhere.  I had asked my doctor to refer me to a specialist, but he couldnít do that until Iíd gotten some positive lab test results.  Iím reluctant to send my long specimens to a lab that is just going to declare them negative and not determine what they are. The worms that I pass are in various states of disintegration.  Most of the time, they fall apart when I try to retrieve them.  So even though I pass tons of worms, itís hard to get good samples.  I have an appointment with my doctor later this month.  So Iíll show up with my samples and discuss the situation with him then, unless I can come up with some other idea of what to try next. 

I found this fascinating web site of some anonymous self-experimenters who have lyme disease.  They treated themselves with high doses of salt and vitamin C.  Subsequently tons of parasites came out of them.  They got a microscope and took pictures and documented the various parasites. http://www.lymephotos.com/

Somewhere on this journey I realized that I have been in a bodily state of cleansing and purging.   I think that Iíve had these worms for a long time.  I havenít been nose clipping very much lately.  I still continue to follow the non-addictive food diet and enlightened tasting.  I had no idea that it would lead me into all this.  But on some deep level I know that itís good. 
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It took 1 year of nose clipping
to lose 20 pounds (from about 140 to 120)
Dropped from size 8-10 to size 4
I'm 5' 4.5"

Read about my success nose clipping regular food instead of doing oil or sugar: http://boards.sethroberts.net/index.php?topic=5903.

Sanchiaza

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Re: The Non-Addictive Food Diet
« Reply #48 on: October 04, 2010, 01:01:24 AM »

Gosh, Heidi, you've had an experience  :shock:

Here's hoping for a more enlightened attitude from your healthcare providers.

You're in my thoughts.
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karky

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Re: The Non-Addictive Food Diet
« Reply #49 on: October 04, 2010, 09:44:35 AM »

Heidi,
I thought of you this past weekend.
My relatives were laughing about one of the cousins thinking their kid had worms, because they could see them in the diaper.
When they were tested, the "worms" turned out to be banana fibers.


Not that you could have a 2 foot banana fiber.† :shock:
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nougat

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Re: The Non-Addictive Food Diet
« Reply #50 on: October 05, 2010, 09:16:35 AM »

heidi i so hope  you find a solution asap!
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Heidi 555

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Re: The Non-Addictive Food Diet
« Reply #51 on: April 21, 2011, 04:48:22 PM »

Hi everyone.  I didnít realize that itís been so long since Iíve given an update on my situation.  I thought it had been about 3 months and Iím amazed to see that almost 7 months have passed!

The first news is that I completely stopped nose-clipping right after my last post.  So absolutely no nose clipping for 6 Ĺ months.  Nose clipping was no longer working for me and was interfering with healing my food addiction.  Perhaps in the future Iíll go back to it.

My parasite symptoms intensified.  I have been passing worms and worm material, 3 times a day, every single day, for 5 months now.  I figured out why I never saw any worms and had no idea that I had them.  I know this is really gross, but the worms died in me and then their carcasses got layered onto my intestines.  Iíve been passing some really old worm material and itís not a pretty sight.  But it sure feels good to get that crap out.  Iíve been corresponding with another woman who has as many worms as I do.  Plus keeping up with info on parasite forums. 

Basically I had a really miserable winter.  I was exhausted and struggling to keep up with things.  Plus it was the worst winter that I can remember weather wise.  Plus I was too sick to go to Florida for a vacation.

About a month or so ago, I got some of my strength and energy back.  I started making and consuming tons of fermented vegetables of all kinds.  I especially like and recommend beet kvass.  Iíve been drinking lots of it.  I eat fermented vegetables at every meal.  Spring has felt exceptionally precious this year. I started hooping again outside in the sun.  I havenít been able to exercise for eons.  It feels heavenly.

I have had near perfect compliance with my non-addictive food diet.  I have continued to taste and spit food that is addictive.  Overall, my food addiction has lessened considerably.  However, I think that the majority of my food addiction is driven by the parasites.  I donít think that Iíll have full success with my diet until I have eliminated all worms.  And who knows how long that will be.  Iíve been assuming that itís going to take another year or more.  I think that Iíve had these worms for at least 24 years, if not my whole life.  Getting rid of them is quite a process.  They are like cockroaches.  They know how to survive, stay undetected, and reproduce.

Weight wise I gained back half of my weight that I lost on SLD.  Ten pounds according to my scale weight first thing in the morning.  However, it seems like a lot more because I have a lot of bloat.  Plus all the weight gain is on my stomach, hips, thighs, and butt.  So basically none of my pants fit.  Itís definitely depressing because I eat very little calorie wise.  My body is comfortable surviving on next to nothing while feeding and breeding thousands of worms.  I am grateful however, that my weight gain hit a plateau.  Plateaus are wonderful when you have been gaining weight!

My highest priority is worm eradication.  Second priority is eliminating all food addiction.  Ideally I would like to have no interest in and even a distaste for all addictive food.  Losing weight is down to third place and doesnít seem likely to happen in the near future.  I need to figure out how to restore my metabolism.  My body holds onto every paltry calorie.  If I cut calories any more Iíd be eating anorexic amounts of food. 

I think that enlightened tasting works but that itís a really slow process. If you donít have worms, then perhaps it might go faster.  Each food item and combination of foods must be individually deconditioned.  A few foods (whipped cream, butter, high quality chocolate) are taking an exceptionally long time to decondition.  I know that heavy cream and butter are the wormís absolute favorite foods.  Iím not sure about chocolate.  When Iíve been at functions with lots of baked goods and other temptations, Iíve been able to refrain from eating anything that is not on my diet.  This in itself is an amazing accomplishment.  However, I really want to get to the place where I have absolutely no interest in those foods.  I know itís a bit extreme, but I have been at the mercy of parasites and food addiction for a long time. 

I had no idea when I began SLD 3.5 years ago that it would be such a wild and crazy journey.  I really want to fully heal the root of my food addiction.  Nose-clipping took me part way there.  But to heal on a deeper level I needed to let go of it and focus on the enlightened tasting.  Hopefully I will soon abandon that tool, too.  I see the light at the end of this dark tunnel.  But who knows how many more crazy things I might have to do before I reach it.  Wishing everyone good steady progress.  Some things take a long time!
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It took 1 year of nose clipping
to lose 20 pounds (from about 140 to 120)
Dropped from size 8-10 to size 4
I'm 5' 4.5"

Read about my success nose clipping regular food instead of doing oil or sugar: http://boards.sethroberts.net/index.php?topic=5903.

shovelqueen

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Re: The Non-Addictive Food Diet
« Reply #52 on: April 21, 2011, 05:15:03 PM »

Whew! That is quite a journey, Heidi!  Glad to hear that you are feeling better with spring and an end is in sight, even if a ways away.  Very few of us oldtimers around anymore. 
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VeganKitten

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Re: The Non-Addictive Food Diet
« Reply #53 on: April 21, 2011, 05:53:22 PM »

Have the parasites been medically confirmed?

There is such a thing as Delusory Parasitosis:
http://www.health.state.mn.us/divs/idepc/dtopics/pests/dp.html
http://neuro.psychiatryonline.org/cgi/content/full/20/1/112
http://cmr.asm.org/cgi/content/full/22/4/690
http://www.ncbi.nlm.nih.gov/pubmed/11372814?dopt=Abstract

According to what I've read, this disorder is more than twice as common in women than men, and most prevalent in middle-age and older patients. Medication has been successful in some cases.

I hope you can soon find some relief!

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Heidi 555

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Re: The Non-Addictive Food Diet
« Reply #54 on: April 22, 2011, 05:09:35 PM »

Thanks SQ.  It sounds like the Whole 30 Challenge is going exceptionally well for you.

Have the parasites been medically confirmed?

There is such a thing as Delusory Parasitosis:
http://www.health.state.mn.us/divs/idepc/dtopics/pests/dp.html
http://neuro.psychiatryonline.org/cgi/content/full/20/1/112
http://cmr.asm.org/cgi/content/full/22/4/690
http://www.ncbi.nlm.nih.gov/pubmed/11372814?dopt=Abstract

According to what I've read, this disorder is more than twice as common in women than men, and most prevalent in middle-age and older patients. Medication has been successful in some cases.

I hope you can soon find some relief!

Hi VK!  I hope that things are going well for you.

Delusional parasitosis is a bit of a touchy subject for me. 

Unfortunately I have come to the conclusion that the medical system in the US is delusory concerning the existence of human parasites.  Iím sure that there are people who legitimately suffer from delusional parasitosis.  But unfortunately I think that there are also lots of people who actually have parasites, who have been diagnosed with delusional parasitosis instead.  Ironically, some psyche meds are effective for certain kinds of parasites. 

The type of parasite that I have, Ascaris lumbricoides, is THE most common human parasite.  Billions of people have it.  Chances are pretty high that you (meaning anyone reading this) have a few of them in your intestines. (Just like your dog or cat is likely to have Toxacara canis or Toxacara cati the equivalent roundworm species that infects them.) Ascaris lumbricoides is long (1 foot to over 2 feet) but thin.  Humans can also be infected with Toxacara but those are smaller.  Also, Ascaris suum the roundworm associated with pigs can infest humans.  Those ones are thicker and larger. 

I have passed ridiculous numbers of Ascaris lumbricoides in all stages of decay, except for alive and mint condition.  The evidence in the toilet is not a hallucination. (A five-year-old child could easily identify an intact ascaris specimen as a worm.)  I have had my husband and also a close friend examine the parasite material that I have passed.  They both agree that I am passing just one kind of parasite in a huge range of stages of decay.  My husband jokes that I should collect the evidence in a bucket and bring it to the doctors.  Because I see tons of worms in all these graduated stages, it makes it obvious that it is all the same organism.  My ability to identify Ascaris has gotten quite good because Iíve seen so much of it, in so many states.

When I sent 2 foot long specimens to 2 different labs, the lab tests came back negative.  But they also did not identify what it is.  I have personally spoken to the people in the labs and many doctors and alternative health professionals.  Most of them are uneducated and clueless concerning parasites.  The honest ones will admit that they donít know much and canít help you.  But unfortunately the rest spread misinformation.  Some of the standard medical information about ascaris is wrong.  If you have a significant parasite problem, then you are likely to get better help and diagnosis in a third world country.  Medical tourism is becoming common for this affliction.  I have heard of people traveling to places like Cuba and Panama and receiving better care.  If you travel to less developed countries, it is recommended that you get tested and treated for parasites before you come home.

I wish that I had been more educated about parasites.  It would have saved me years of suffering.  For me it is the root cause of a number of chronic health conditions.  It is empowering to finally know what is really wrong with me after all these years.  So many unexplained pieces have fallen into place and now make sense. 

If it hadnít happened to me, then I never would have believed that it was possible to harbor so many large worms and not know about it. (However, I think that if I had looked carefully and knew what to look for, then I probably would have seen an occasional sign.)  Many people with eating disorders have parasites at the root of their problem.  Anorexia, food addiction, obesity, or an inability to gain weight could all be parasite related.  Also, anxiety disorders and sleeping problems, as well as a slew of other illness, may have parasites as the root cause. The medical system believes that we donít have a problem with parasites in this country.  So they donít even suspect parasites to be a problem.  Then the lab tests they use are completely ineffective.  I hope that posting the details of my experience helps to educate other people.  Perhaps someone else may resolve a long standing health or diet issue by considering the possibility that parasites may be a contributing cause. 
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It took 1 year of nose clipping
to lose 20 pounds (from about 140 to 120)
Dropped from size 8-10 to size 4
I'm 5' 4.5"

Read about my success nose clipping regular food instead of doing oil or sugar: http://boards.sethroberts.net/index.php?topic=5903.

Seth Roberts

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Re: The Non-Addictive Food Diet
« Reply #55 on: April 22, 2011, 06:13:30 PM »

That's a fascinating and enlightening story, Heidi. I'm glad you're feeling better. I have told Tim Beneke how you used enlightened tasting, which he originally called "enlightened bulimia". How did you first come to suspect and then realize you had worms?
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VeganKitten

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Re: The Non-Addictive Food Diet
« Reply #56 on: April 22, 2011, 11:24:47 PM »

I can definitely see how it would be a touchy subject, sorry if I offended you. I wonder why labs aren't able to identify specimens though, in so many cases? It seems like quite a widespread phenomenon to be completely missing out on -- if that's what's happening. If a 'lay person'/amateur expert can identify species on sight... there should be no mystery. Especially if you don't even need a microscope.

 I'm looking up Ascaris lumbricoides - Giant Roundworm! Definitely no microscope required!  :o
http://en.wikipedia.org/wiki/Ascaris_lumbricoides
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Heidi 555

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Re: The Non-Addictive Food Diet
« Reply #57 on: April 23, 2011, 04:57:23 PM »

That's a fascinating and enlightening story, Heidi. I'm glad you're feeling better. I have told Tim Beneke how you used enlightened tasting, which he originally called "enlightened bulimia". How did you first come to suspect and then realize you had worms?

lol Seth. ďEnlightened bulimiaĒ is a humorous name for it.  Though probably only to someone who does it, and it definitely won't help to promote it.  Do you know if Tim Beneke was able to eliminate his food cravings by doing it?  He probably hasnít done it as much as I have.  I do tend to be exceptionally thorough in my experimentation.  

On April 16 of last year, I stopped consuming all addictive food and started ďenlightened bulimiaĒ.  Soon after I started not feeling well.  I had a hard time sleeping and would wake during the night feeling really wired.  I was puzzled that I didnít feel well, because I knew that my diet was healthier than it had been before.  

At the beginning of June I started seeing an occasional worm wrapped around my stool.  I freaked out and couldnít deal with it at first.  My husband convinced me that it was probably a worm and to go to a doctor and get it checked out.  Thankfully, heís not squeamish about these kinds of things.  The first practitioner I saw glanced at my specimen and diagnosed me with ascaris, which is what I thought it was from doing some online research.  Initially, I thought I had a handful of worms that would be easy to kill with a few rounds of deworming meds.  It wasnít until 6 or 7 months later that the full extent of my problem became clear.  

I was extremely sick over 20 years ago.  I saw many health practitioners, both medical and alternative, but I never got a diagnosis that felt right.  It took many years of hard work and good health practices before I got well enough to work and function again.  But I never got fully better and had lingering symptoms.  I couldnít shake the feeling that there was something really wrong with me underneath.  So itís a tremendous relief to finally know what my problem is after all these years.  But Iím also grieving the loss of so much of my life.  For example, I never was well enough to have children.  Also, Iíve only been able to work part time and that has been a struggle financially.  I never had the energy levels that most people have and always had to be careful not to do too much.  Plus I had an odd assortment of symptoms that didnít make sense until now.

The enlightened tasting has been and continues to be enlightening.  On a visceral experiential level you understand how you have conditioned your body to like and crave specific foods.  Thereís a feeling like Iím unraveling a lifetime of perpetually reinforced addiction.  

Also, I suspect that thereís something about enlightened tasting that is detrimental to the worms.  Maybe my body secretes enzymes in anticipation of digesting all this rich and junky food.  But then the enzymes help to digest the worms instead.  Iím just making a guess here.  But tasting and spitting out sports drinks did improve athletic function.  See: http://boards.sethroberts.net/index.php?topic=7018.0  So there is some kind of physical response to it.  

My journey to healing has been so wild and crazy Ė from nose clipping most of my food, to tasting and spitting addictive food, to passing tons of worms Ė and itís not over yet!  Each thing emerged from the wake of what preceded it.  Itís not an option to turn back.  I just have to see it through to the end.  
Logged
It took 1 year of nose clipping
to lose 20 pounds (from about 140 to 120)
Dropped from size 8-10 to size 4
I'm 5' 4.5"

Read about my success nose clipping regular food instead of doing oil or sugar: http://boards.sethroberts.net/index.php?topic=5903.

Heidi 555

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Re: The Non-Addictive Food Diet
« Reply #58 on: April 23, 2011, 05:01:19 PM »

I can definitely see how it would be a touchy subject, sorry if I offended you. I wonder why labs aren't able to identify specimens though, in so many cases? It seems like quite a widespread phenomenon to be completely missing out on -- if that's what's happening. If a 'lay person'/amateur expert can identify species on sight... there should be no mystery. Especially if you don't even need a microscope.

 I'm looking up Ascaris lumbricoides - Giant Roundworm! Definitely no microscope required!  :o
http://en.wikipedia.org/wiki/Ascaris_lumbricoides

Thanks VK.  No problem about your post.  I wasnít offended because I knew that you had no idea how difficult itís been for me (and most folks on the parasite forums) to get medical help.  You just stimulated me to jump on my soapbox!  I worried that my doctor was going to diagnose me with delusional parasitosis, but fortunately he didnít.  However, he did believe the lab tests more than the worm specimens that I brought in.  In general doctors have moved away from physical exams and physical evidence.  Instead they completely rely on tests, which I think is problematic, especially if the tests turn out to be wrong.  Some people have brought their worm specimens to a vet and said that they were from their dog.  They were easily able to get a diagnosis from the vet.  Vets are much more experienced in parasite diagnosis.  

The whole experience continues to be unbelievable to me.  I canít quite wrap my mind around the facts that I have so many large creatures residing in me, and that the labs and doctors canít identify something so large and obvious
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It took 1 year of nose clipping
to lose 20 pounds (from about 140 to 120)
Dropped from size 8-10 to size 4
I'm 5' 4.5"

Read about my success nose clipping regular food instead of doing oil or sugar: http://boards.sethroberts.net/index.php?topic=5903.

Seth Roberts

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Re: The Non-Addictive Food Diet
« Reply #59 on: April 23, 2011, 06:03:16 PM »

Thanks for the additional details, they really help put your story in context.

"Enlightened bulimia" although humorous was not a good name for it because it didn't involve food already in the stomach (bulimia). It just involved spitting out food you have tasted -- which is what wine tasters do. Since there isn't anything wrong with spitting stuff out "enlightened" isn't an especially good word either. . . . Not that I have a better name in mind. Now that it is clear it can be so helpful perhaps a better name would be a good idea. It is not so popular that it is too late to change the name .... :)

In any case what about the possibility that the enlightened tasting helped because it caused you to eat less junk food? Less junk food, less worms. Because the junk food was so calorie-rich, the calories in them survived further into the digestive process -- that is, further into your intestines. Whereas with ordinary food, most of the calories are removed early.

someone should create a website where we can nominate people for Stupidest Doctor in America. . . . Not being able to realize that a worm is a worm is egregious.
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